Por qué las farmacéuticas luchan por mejorar la experiencia del paciente

A continuación reproducimos un estudio publicado en In Vivo en Junio de 2021. Si bien el estudio se realizó en EE.UU. donde las condiciones de comercialización de fármacos son diferentes que en Europa, presenta conclusiones aplicables tanto para el lanzamiento de medicamentos como para programas de soporte a paciente. Una encuesta en profundidad realizada a […]

Experiencia de paciente IEXP

Nube de etiquetas:
atención centrada en paciente compañías farmacéuticas empresas farmacéuticas experiencia de paciente farmacéuticas laboratorios farmacéuticos patient centricity pharma

Nace la primera comunidad de pacientes COVID-19

El Instituto de Experiencia de Paciente (IEXP) y Acuam Healthcare, creadora de la comunidad de pacientes crónicos Pacientalia® se unen para dar voz a pacientes afectados por la COVID- 19 y familiares. La plataforma, disponible para descarga gratuita en iOS y Android, les conecta, allí se dan apoyo y comparten su experiencia tras superar […]

Co-creación en salud Covid-19 Experiencia de paciente IEXP salud digital

Nube de etiquetas:
acuamhealthcare CEU comunidad de pacientes coronavirus covid Covid-19 datos experiencia de paciente inteligencia artificial pacientalia patient centricity sociedad española de calidad aistencial

Patient Experience in Fertility 2: practical examples on how to apply it to clinical practice

The latest post described how important patient experience is in fertility in contrast to the small amount of research done in the field. We promised to describe examples from clinical practice on how to improve patient experience and by that achieve significant impacts for patients and the organization. May be it is not very modest […]

Co-creación en salud Health co-creation Medical anthropology participatory healthcare Patient co-creation patient engagement patient experience

Nube de etiquetas:
co-creation design thinking egg donation fertility genea health co-creation Human Reproduction innovation IVF IVF-SPAIN Jan Kremer patient centricity patient co-creation patient driven design

A patient driven research platform

Can a patient co-design a clinical trial that is related to his disease? We have met these days Delos Clinical, a different CRO. Specialized in clinical trials, Delos created Manthano, a crowdsourcing and crowdfunding platform that heavily engages patients. This is why we asked Emilio García Cabrera, from Delos Clinical, to write a post about […]

co-creation Health co-creation Patient co-creation patient engagement patient experience

Nube de etiquetas:
CRO crowdfunding crowdsourcing Delos Clinical Manthano medical crowdfunding medical crowdsourciing patient centered research patient centricity patient driven research patient knowledge research crowdfunding research crowdsourcing research platform

The Embryologist of the future as specialists in human centred design

In the world of artificial reproduction (ART), the physician is the visible face to the patient. But treatments would have no success chance without the hidden work done in the embryology lab. There, like in an ex vivo uterus, technology imitates nature and produces the miracle of conception. This miracle is possible thanks to the […]

Health co-creation patient engagement patient experience

Nube de etiquetas:
embryology IVF IVF-SPAIN medical anthropology patient centered design patient centricity patient driven clinical trials patient driven innovation patient-centred care

What do patients expect from healthcare organizations

Today we have a special guest writing in our blog. It is José María Iribarren, Patient Experience Director of the Spanish Healthcare Service in Navarra. Usually in this blog we approach to patient experience from a close and micro point of view; an ethnographic approach. For this reason we find it interesting to know if […]

Health co-creation Medical anthropology patient engagement

Nube de etiquetas:
healthcare hospitity José María Iribarren patient centricity patient expectations patient experience patient-centred care Spanish Healthcare Service

“Medicine is not dehumanized, but healthcare yes”

The Spanish 20th Congress for Healthcare Humanization took place in a Madrid Hospital on May 27th and 28th this year. One of the most interesting speakers was Dr Concha Zaforteza, an outstanding specialist in the use of participatory methodologies for change management in clinical praxis. More about her brilliant path as a researcher and nurse can be […]

Medical anthropology Patient co-creation patient engagement patient experience

Nube de etiquetas:
Concha Zaforteza healthcare hospital humanization Intensive care medical anthropology Nurse Nurse studies participatory action research patient centricity patient knowledge patient social context

Four arrhythmias and (luckily) no funeral

May be this post is a bit long, but it will be certainly useful to define what s patient experience. We present the case of one single patient –written by him- because in a short time he had to be taken admitted 4 times in 3 different hospitals due to atrial fibrillation. Applying ethnographic analysis […]

Medical anthropology patient engagement patient experience

Nube de etiquetas:
anthropology arrhythmia atrial fibrilation cardioversión ethnography medical anthropology patient centricity patient insights private healthcare public healthcare

When citizens co-design healthcare services – the case of Participle in the UK

By Kate Bagley, Participle Participle is an amazing non-profit organization that contributes in a very interesting way to patient centeredness and to better healthcare services in the British National Healthcare System (NHS) by using –as the name suggests- participation as one of the main tools. Participle’s projects have a very interesting impact in terms of […]

Health co-creation Patient co-creation patient engagement patient experience

Nube de etiquetas:
co-creation co-design health co-creation healthcare Kate Bagley NHS participation participatory action research participatory design Participle patient centricity patient insights patient knowledge patient-centred care relational welfare service design

How to build a patient intelligence system

Professor Horcajadas, the well know specialist for reproductive genetics with 45 international papers on the issue, compares the difference between traditional genetic techniques and sequencing with fishing. “Using sequencing is like having an industrial fishing net, while traditional techniques are like using a fishing rod”. But he warns, that “the quality of data in the […]