Patient Experience in Fertility 1: Conclusions of Eshre 2016

On Wednesday july 6th this year’s conference of the European Society of Human Reproduction and Embriology (ESHRE) closed successfully its 2016 edition in Helsinki. As a medical congress, it is natural that most of the over 300 lectures dealt with medical, surgical, embryology and genetic issues. Yet the total amount of lectures dealing with patient issues […]

Co-creación en salud Health co-creation Medical anthropology patient engagement patient experience

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egg donation Eshre fertilty IVF IVF-SPAIN Jan Kremer medical anthropology patient insights patient knowledge

A patient driven research platform

Can a patient co-design a clinical trial that is related to his disease? We have met these days Delos Clinical, a different CRO. Specialized in clinical trials, Delos created Manthano, a crowdsourcing and crowdfunding platform that heavily engages patients. This is why we asked Emilio García Cabrera, from Delos Clinical, to write a post about […]

co-creation Health co-creation Patient co-creation patient engagement patient experience

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CRO crowdfunding crowdsourcing Delos Clinical Manthano medical crowdfunding medical crowdsourciing patient centered research patient centricity patient driven research patient knowledge research crowdfunding research crowdsourcing research platform

“Medicine is not dehumanized, but healthcare yes”

The Spanish 20th Congress for Healthcare Humanization took place in a Madrid Hospital on May 27th and 28th this year. One of the most interesting speakers was Dr Concha Zaforteza, an outstanding specialist in the use of participatory methodologies for change management in clinical praxis. More about her brilliant path as a researcher and nurse can be […]

Medical anthropology Patient co-creation patient engagement patient experience

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Concha Zaforteza healthcare hospital humanization Intensive care medical anthropology Nurse Nurse studies participatory action research patient centricity patient knowledge patient social context

When citizens co-design healthcare services – the case of Participle in the UK

By Kate Bagley, Participle Participle is an amazing non-profit organization that contributes in a very interesting way to patient centeredness and to better healthcare services in the British National Healthcare System (NHS) by using –as the name suggests- participation as one of the main tools. Participle’s projects have a very interesting impact in terms of […]

Health co-creation Patient co-creation patient engagement patient experience

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co-creation co-design health co-creation healthcare Kate Bagley NHS participation participatory action research participatory design Participle patient centricity patient insights patient knowledge patient-centred care relational welfare service design

How to build a patient intelligence system

Professor Horcajadas, the well know specialist for reproductive genetics with 45 international papers on the issue, compares the difference between traditional genetic techniques and sequencing with fishing. “Using sequencing is like having an industrial fishing net, while traditional techniques are like using a fishing rod”. But he warns, that “the quality of data in the […]

Medical anthropology patient engagement patient experience

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big data José Horcajadas knowledge management medical anthropology patient centricity patient insights patient intelligence patient knowledge patient social context

Patient intelligence versus electronic medical records

In the last post we saw that despite a huge amount of data in electronical medical records and other IT systems supporting healthcare, our knowledge on patients is little. This knowledge gap makes a huge difference in terms of therapeutic effectiveness and of costs. In one example the difference between data and knowledge meant spending […]

Health co-creation Medical anthropology Patient co-creation patient engagement patient experience

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anthropology IVF-SPAIN medical anthropology medical paradigm patient centricity patient insights patient intelligence patient knowledge patient social context Rishi Manchanda upstream doctors upstream medicine

What do we know about patients – and what don’t we know?

A recent post by Tim Kilpatrick in MedCity News dealt with the cost of not taking into account real patient needs. As an example he quotes the case of a 90 year old patient admitted into the hospital with a congestive health failure. The article writes that the US healthcare system “will pay for the […]