Publications

Publications IEXP

A varied and interesting list of publications

Patient Journey in Cystinosis: Focus on Non-Adherence and Disease Management

Analysis of the challenges in adherence to cysteamine therapy and its impact on the quality of life of patients with cystinosis.

5 Dimension Patient Experience Model.

The IEXP five-dimension patient experience model provides a comprehensive approach to understanding the experiences of patients with chronic illnesses, covering the physical, emotional, social, cultural, and healthcare aspects, and is applied in rehabilitation projects and process improvements across various healthcare areas.

Development of a Patient Journey Map for Improving Patient Experience and Quality of Atopic Dermatitis Care

You can view the project by clicking on the "View Publication" button.

Patients' and health professionals' views on home and remote clinical assessment: A qualitative study Qualitative study in Spain and Brazil. Implications for clinical trials and current practice.

What are the needs and preferences of patients and healthcare professionals (HCPs) in Spain and Brazil in relation to remote and home-based clinical trials, as well as the impact of decentralised clinical trials.

Patient experiences with indwelling catheters and potential usefulness and acceptance of the T-Control urinary catheter prototype.

The study analyses the experience of patients with urinary catheters and evaluated the usability of a new device called T-Control®.

Guide for the Design, Implementation and Measurement of the Patient Experience in Hospitals through PREM

A very useful guide to implement and measure the results of patient experience projects in hospitals.

Testing of Patients First in a real-world setting, as a patient experience accreditation tool for hospitals and clinics

Many healthcare providers are developing patient experience strategies and investing in this area.

First PROM and PREM in home respiratory care. Poster for ICHOM

Patient-reported outcome measure (PROM) and Patient-reported experience measure (PREM) in home respiratory therapies

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Good practice guide for Assisted Reproduction Professionals

Guide to good practices for assisted reproduction professionals for the care of lesbian women and couples.

see publication

Validation of the Patient First Certification for hospitals and clinics.

Poster about the validation of the Patients First Certification as a patient centric hospital, presented at the XP Congress 2018

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